And the seizures continue. The dose has been raised again today to no avail. Dr. Duffy was just here and the plan is to take another blood sample for levels tomorrow morning and then probably raise the dose again. Sounds familiar. If it doesn’t work, it will then be a different medication.
Dr. Duffy assured me that the seizures in themselves are not harmful (yet), and that there is still quite a margin in dosage to work with. They prefer to up it slowly rather than to knock her out with the maximum dose. This way they can be more accurate with the quantity that is actually needed. I am not using this technique. I am using my full dose of will power to stop the damn seizures and let her be in peace. My results are just like Dilantin. Very disappointing. It’s amazing that this little tiny baby who is now almost entirely composed of drugs (three anti seizure medications concurrently) twitching in her whole left side continuously can still make me laugh. Now that’s a sense of humor. I took Ella down to the cafeteria this evening in her stroller to get myself some dinner. Ella looked around very interested and amused.
I was so proud of her, I puffed up my right cheek to show everyone we were together.